Living with Sickle Cell Disease: A Story of Resilience and Hope

As she sits in her small apartment, surrounded by the vibrant colors of her artwork, 25-year-old Chikondi Mwamba exudes a sense of calm and determination. But behind her bright smile and infectious laugh lies a story of struggle and resilience.

Mukoka was diagnosed with sickle cell disease (SCD) at the age of six. Since then, she has faced countless hospitalizations, painful crises, and the stigma that often accompanies this genetic disorder.

"I remember feeling so alone and scared," Mukoka recalls. "People would say, 'Oh, you're sick, you can't do this or that.' But my parents were always there to encourage me, to tell me that I was capable of achieving anything I set my mind to."

Despite the challenges, Mukoka refused to let SCD define her. She pursued her passion for art, using her creativity as a way to cope with the pain and frustration. Today, her artwork is a testament to her strength and resilience.

"My art is my escape," Mukoka explains. "When I'm painting, I forget about the pain and the struggles. I'm free."

Mukoka's story is not unique. Thousands of people in Zambia live with SCD, facing similar challenges and stigma. 

But Mukoka s determination and refusal to give up have inspired countless others to do the same.

"She's a true warrior," says Dr. Bwalya ( name withheld), a hematologist at the University Teaching Hospital.

 "Mukoka's story is a reminder that SCD is not a death sentence. With proper care and management, people with SCD can lead active and fulfilling lives."

As Mukoka looks to the future, she remains committed to raising awareness about SCD and promoting education and understanding. She knows that by sharing her story, she can help break the stigma surrounding this disease and inspire others to do the same.

"I want people to know that SCD is not something to be ashamed of," Mukoka said 

"It's a part of who I am, but it doesn't define me. I am strong, I am resilient, and I am capable of achieving anything I set my mind to."

Facts About Sickle Cell Disease:

1. SCD is a genetic disorder that affects the production of hemoglobin.

2. the proper management and care, people with SCD can lead active and fulfilling lives.

1. Sickle Cell Disease Association of Zambia

2. Ministry of Health, Zambia

3. World Health Organization (WHO)

Photo caption: Given Mukoka a 25-year-old artist living with sickle cell disease, sits in her apartment surrounded by her vibrant artwork.